KKM
Play God?
Multiple
myeloma is a rare form of blood cancer. My wife has been diagnosed with the
disease 7 years ago. Since then she has been undergoing chemotherapy treatments
for the first four years at Ampang Hospital, Kuala Lumpur, and then at Hospital
Raja Perempuan Bainun (HRPB), Ipoh until now. The haematology specialists from
both hospitals have more or less exhausted the types of chemo drugs used on
her, at best they retard the cancer cells. Earlier on, she had stem cell treatment at Ampang
Hospital and this gave respite of good health for a couple of years before
relapse.
Lately,
the cancer cells have become aggressive and my wife has been in and out of
hospital. Now, she is much weakened. For the latest treatment, and as a last
resort, the specialist at HRPB, Dr. Kamini recommended the use of Darzalex, weekly
doses for the first month, subsequently fornightly and later on monthly. She
had the first two doses already and the third next week.
Both
of us are retired governments, my wife a former teacher and also lecturer at UKM
and UITM. I was with MARDI for 20 years.
I have applied to MARDI to pay for the
expensive drug, RM12,800 for each dose of 2 vials supplied by MS Ally. Time is
not on our side as the approval will take time as MARDI has to get the go-ahead
from the Kementerian Kesihatan Malaysia (KMM), so for the beginning we pay
first and to get reimbursements later once approved. We are confident that it will
be straightforward case because MARDI has no stipulation as to the cost. Lo and
behold, we got word ie. unofficially from the KMM people that they cannot approve use of the
drug because it is expensive and not in their list!
Are
they ignorant that the party responsible payment of the drug is MARDI not KKM.
If the drug is not the list, there must be a committee to review it because the
medicine world changes by the hour due to their (west) innovative research. We
just relax and say they have done it all. Is to review the list something
big and difficult? We are talking about saving life, not money. Is life that
cheap? Let us not play god. Anyway, the drug has been on compassionate list
before, why KMM pulled it back? Each cancer patient has his/her
own chemo treatment regime accordingly, thus not many need to use Dovralex. This further
adds to the cost .
If they do not approve (officially) then we
are going to exhaust all avenues of appeal to KMM up to the Minister and even
up to PM. We have nothing to loose. We perceive it as an injustice to deprive
my wife getting the treatment. Nobody wants to get cancer! The Ministry must
listen to reasons and approve the drug use. Thank you. I will do anything for
my wife, my love. I will solo picket if needs be.