Saturday, September 26, 2020

MOH - WHAT THE FUCK


This is the epilogue of "MINISTRY OF HEALTH PLAY GOD" posting on MONDAY, OCTOBER 28, 2019


Multiple myeloma is a rare form of blood cancer. My wife was diagnosed with Stage 4 of the disease 8 years ago. She undergone chemotherapy treatments for the first four years at Ampang Hospital, Kuala Lumpur, and then at Hospital Raja Perempuan Bainun (HRPB), Ipoh until succumbed to the disease on 11 November 2019 aged 67. 

The haematology and other specialists from both hospitals tried their very best and exhausted the range of chemo drugs to treat her.  Apparently the drugs worked to some extent killing and retarding growth of the cancer cells but not to cure. This was evident otherwise my wife could not survive that many years. 

I was practically embedded in the hospitals at Ampang and Ipoh taking care of my wife for all those years. Seeing the doctors' dedication, patience, and understanding in treating her and other patients suffering of different cancer types I have come to the conclusion that the doctors especially and the nurses generally are the primary movers of the nation. Night is day and day is night is their schedule of work. The public sometimes can be insensitive and quick to complain that doctors are not attending patients early enough.

To all the doctors and nurses that took care of my wife I am greatly indebted with no means of paying them back. May God bless them with success and good health. 

MOH TIME LINE - FUCKED UP  

When the cancer cells became very aggressive and unresponsive to  current drug treatment the specialist at HRPB recommended the use of Darzalex, a new drug that has been around for for a couple of years. 

Early October 2019 - sent letter of application  to MARDI to pay for the expensive drug - RM12,800 for each dose of 2 vials to be administered  by injection for a number of times. The drug is supplied by MS Ally. Time was not on our side knowing the approval would take time. We decided to pay up-front for the Darzalex and get reimbursements from MARDI (my former employer) later, and MARDI has to get approval from the Ministry of Health (MOH). 

5 November 2019 - MOH response to MARDI's request for approval to procure Darzalex.



6 November 201 - my beloved passed away.


27 January 2020 - MOH approved use of Darzalex.



2 February 2020 MARDI received approval letter of MOH


Mid February 2020 - letter  from MARDI informing me for the  go ahead to obtain Darzalex from supplier. 



What I want demonstrate here in this case is that MOH's bureaucratic administration is fucked up with little Napoleons play god. They are indignant of the value of life and urgency. For your arrogance and makan gaji buta may you get your dues. Kamikup.

Death is certainty in Allah's domain. And we, humble humans do not know when death will overtake us. Realising that we have to persevere to be healthy and do good. 

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